{"created":"2023-06-20T13:23:42.551708+00:00","id":28,"links":{},"metadata":{"_buckets":{"deposit":"21239e05-effb-407a-94b0-c6822b656aa5"},"_deposit":{"created_by":5,"id":"28","owners":[5],"pid":{"revision_id":0,"type":"depid","value":"28"},"status":"published"},"_oai":{"id":"oai:fnc.repo.nii.ac.jp:00000028","sets":["1:8"]},"author_link":["209","214","208","212","213","210","25"],"item_10002_biblio_info_7":{"attribute_name":"書誌情報","attribute_value_mlt":[{"bibliographicIssueDates":{"bibliographicIssueDate":"2020-02","bibliographicIssueDateType":"Issued"},"bibliographicIssueNumber":"1","bibliographicPageEnd":"90","bibliographicPageStart":"84","bibliographicVolumeNumber":"3","bibliographic_titles":[{"bibliographic_title":"看護と口腔医療"},{"bibliographic_title":"Journal of Nursing and Oral Health Care","bibliographic_titleLang":"en"}]}]},"item_10002_description_5":{"attribute_name":"抄録","attribute_value_mlt":[{"subitem_description":"血友病をもつ子どもの親が抱えるストレスの内容を明らかにするために、国内外の文献の検討を行った。医中誌Web版、PubMedで「血友病」「小児」「親」「ストレス」「コーピング」「困難」「ニーズ」「支援」「家族機能」をキーワードとして文献を検索し、3件の国内文献と、10件の海外文献を分析対象とした。血友病児の親のストレス、および血友病児の親のストレスを軽減する要因について分析した結果、親は、子どもの療養生活と日常生活のQOLに関するストレスを抱える傾向にあった。親は、子どもが血友病であること自体に精神的な苦痛を感じ、子どもの将来を心配していた。また、治療に関して、親は、家庭輸注を開始するにあたり、静脈注射の手技の習得や失敗に苦闘し、子どもに注射をする行為に対しても精神的に葛藤していた。親自身のストレス要因としては、保因者の問題があった。一方で、親は、家庭輸注により、出血から子どもを守る手ごたえを感じていた。親は、静脈注射手技の習得と実施にストレスを抱えながらも、自分が子どもを出血から守ることができるという自信となり、出血や関節症に対するストレスコーピングになっていたと考える。今後は、親のストレスを軽減するために、家庭輸注、子どもの血友病の重症度やインヒビターの有無に応じた療養支援、血友病児に対する子育て支援、そして、保因者の可能性をもつ母親支援について検討する必要がある。","subitem_description_type":"Abstract"}]},"item_10002_publisher_8":{"attribute_name":"出版者","attribute_value_mlt":[{"subitem_publisher":"福岡看護大学看護学部 紀要委員会"}]},"item_10002_relation_12":{"attribute_name":"論文ID（NAID）","attribute_value_mlt":[{"subitem_relation_type":"isIdenticalTo","subitem_relation_type_id":{"subitem_relation_type_id_text":"40022167450","subitem_relation_type_select":"NAID"}}]},"item_10002_source_id_9":{"attribute_name":"ISSN","attribute_value_mlt":[{"subitem_source_identifier":"2433-6106","subitem_source_identifier_type":"ISSN"}]},"item_10002_version_type_20":{"attribute_name":"著者版フラグ","attribute_value_mlt":[{"subitem_version_resource":"http://purl.org/coar/version/c_970fb48d4fbd8a85","subitem_version_type":"VoR"}]},"item_creator":{"attribute_name":"著者","attribute_type":"creator","attribute_value_mlt":[{"creatorAffiliations":[{"affiliationNameIdentifiers":[{"affiliationNameIdentifier":"","affiliationNameIdentifierScheme":"ISNI","affiliationNameIdentifierURI":"http://www.isni.org/isni/"}],"affiliationNames":[{"affiliationName":"","affiliationNameLang":"ja"}]}],"creatorNames":[{"creatorName":"青野, 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